You need to see a doctor and get blood labs to start figuring this out. I’m an old woman and I can say it’s not just age. If the first doctor dismisses you, they may be suffering from Female Symptoms Dismissal Syndrome and you should try another. Could be anything, including something serious like MS.

What are your iron levels in your blood work? Have they looked O2 sats?

What is your diet like? When i eat poorly it really effects my energy. Im not even 30 yet but I’ve noticed i can’t eat junk foods like i did just a few years ago, they leave me feeling lethargic. I tend to do best on a more whole foods diet. Like cooking chicken breast instead of chicken nuggets and avoiding ultra processed foods.

Also is your sleep actually good quality? Do you use any drugs like Marijuana before bed? Are you dreaming pretty consistently? Is your bed time and wake up time consistent?

Maybe MCAS, me/cfs, long covid

I don’t know if anyone has said this, I didn’t go through all the comments, but be sure to probe depression or mood disorders. If you’re not active also definitely try adding a little bit of activity early every day even if you feel like you can’t, just let yourself tap out if you want but at least show up and start to see if you actually want to continue.

I am definitely NOT saying to not continue to probe medical reasons by any means. But feeling tired all the time can be a characteristic of mood disorders and it can be easy to misattribute just how physically tired that can make you for a physical ailment. It can also be hard to see it when you may have coped well with it your whole life, but are only now reaching the burnout from it.

*Said as a human not an expert at all.

Get a sleep study done, pushing 40 and not at all normal, once in a while I’ll wake up slowly, or wake up before my body does, and it’s uncomfortable, happened maybe once or twice and if it ever happened multiple days in a row I’d be bringing it up with my primary.

In the comments you said you get tests run every 4-6 weeks. In my experience old age problems don’t start at 32.

Try some different things in between one of those 4-6 week cycles:

• Track your diet with whatever website or software looking for basic stuff like calories and all the little sodium/calcium/potassium type stuff.
• Drop caffeine entirely. Taper off because the withdrawal headaches suck, and it’ll take pretty much the whole month. I doubt this will help, but the best sleep I ever had was when I quit caffeine.
• If money isn’t a problem grab a blood sugar monitoring kit and spot check it depending on how quickly you want to burn through the consumables. Get advice from people who have to do this on how to do it right.

Is it like a brain fog? One that no amount of water seems to touch? Like you’re moving and thinking through a soup that gets thinner and thinner through the day until it finally gets thin enough to seem normal?

Echoing: talk to a doctor. Keep taking to doctors until you figure out the problem.

Someone suggested it could be low b12, but I’ve been having the sublingual spray for months and there’s no improvement.

If you suspect a B12 deficiency, get tested for it. With serious deficiency you’d likely also see low hemoglobin, low hematocrit, and low neutrophil count in your blood work. Just to be clear though: I’m not a doctor.

The vast majority of “sublingual” B12 is absorbed in the gut. Very little is absorbed through the mucosa. If you have a b12 absorption problem, you may need a B12 injection. You can either get one from a doctor or do it yourself with an insulin needle, if you’re comfortable. I’ve had a B12 deficiency that couldn’t be resolved with any form of oral B12 supplementation.

32 is way too young for those issues to be normal. Honestly the symptoms you describe sounds like a thyroid issue to me. When’s the last time you saw a doctor and had some bloodwork done?

No that is not normal at all.

Go 👏 see 👏 the 👏 doctor 👏👏👏👏👏👏

As someone with massive sleeping issues - no, that is not normal.

As @alienzx@feddit.nl mentioned, it might be sleep apnea. make audio recordings of your sleep - it should be pretty obvious the moment you are able to get the first breath in again, it will probably be a pretty noisy event. If you have apnea: DONT DELAY SEEING YOUR DOCTORS. This condition causes brain damage over time, you dont want to wait this one out.

If it isn’t that, get your bloodwork done, there’s a load of things that might be an issue.

I feel that way waking up if I slept for like 12+ hours straight.

Shot in the dark here, but consider L-methylfolate supplements. It’s the methylated form of folic acid. Your symptoms line up extremely well with someone who is suffering from non-methylated folic acid, due to a mutation on the MTHFR gene.

Basically, your body can’t use folic acid as-is. It needs to methylate it with an enzyme (turning it into L-methylfolate) before it becomes biologically available. And there is a gene mutation that causes you to stop producing that enzyme, the same way you become lactose intolerant when you stop producing the enzyme to break down lactose. It usually happens in your late 20’s or early 30’s, so you’re right in expected timeframe for it to happen.

It’s not on most doctors’ radars, and testing folic acid levels on a blood test won’t help, because you probably have plenty of folic acid. Your cells simply can’t access it. So it tends to fly under the radar. Properly diagnosing it requires a gene test, which most healthcare providers won’t even think about unless you request it. Or I guess you could always just try the supplement and see if your symptoms improve.

The gene mutation is especially common in people who are AFAB, autistic, or Irish. I know because my wife is all three, and has the mutation. You can buy supplements on Amazon. Most people with the mutation take about 15mg of L-methylfolate per day, but suggest starting with about half that in the morning. It will likely keep you awake (and maybe give you a headache, oddly enough) at first, so start with just taking it in the morning, then once you’re used to it you can take a second one with dinner. Then you can simply move up to taking the full 15mg in the morning.

Obviously don’t start taking supplements without looking into it first. But at least this might give you another thread to tug on.

Process of elimination. Other than what’s been mentioned…

1. Does this happen when you’re staying over somewhere else or in a hotel for a few days? If not, may want to check for mold, bed bugs, or airborne particulates. Mold is usually odorless, but can grow behind walls and above ceilings.

2. Can you switch out into a fresh, new set of clothing and/or beddings, and use allergen-free detergents? It’s possible to develop allergies to certain fabrics and cleaning supplies.

3. Ask for a sleep study. Often it involves wearing a special watch continuously for a day or two, then turning it in. Sleep apnea can disrupt flow of oxygen to the brain. There are now ultra-quiet CPAP machines, with very discreet facemasks, so nobody has to be kept awake.